So what is CAS?
When you're told your child has Childhood Apraxia of Speech (CAS) you're scared, but also confused -- and really just don't understand what it means. You can find our definition here but we want to explore what your experiences have been. It's amazing how similar these kids are, and the emotions we share.
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Sam was in speech therapy for several months before he was diagnosed with CAS. We were initially told by his therapist at the time: "It's wonderful he doesn't have CAS because you don't want that." And then we got the call a few months later to tell us she had changed her diagnosis. We were devestated. I in particular went into a stage of denial.My husband took over taking him to therapy. It took me months of grieving and stressing and then I got myself together. Now I take Sam for his twice-a-week therapy sessions and coordinate his daily home practise. We have our good days and our bad days. It's getting better. But he's also becoming more aware that he is different from his peers. But we are determined to help him though it.
ReplyDeleteWe have had to fight to get a diagnosis of CAS over the past couple of years for our son (now 6), and even now some people still say/believe that 'he just has autism. When he wants to communicate he will'. But HE IS communicating. A dual diagnosis has made our road ahead even steeper and some days (like last Thursday!) the struggle seems to be too much to take. But we keep fighting and trying and though it may take us a lot longer than most I do believe that we will see positive improvements over time. I mean, looking back at three years ago I can already see the differences so I just need to keep believing....never give up!
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